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Beyond the pale : folklore, family and the mystery of our hidden genes / Emily Urquhart.

By: Urquhart, Emily [author.]Material type: Text

TextPublisher: London : Jacaranda, 2016Copyright date: ©2016Description: xi, 278 pages ; 22 cmContent type: text Media type: unmediated Carrier type: volumeISBN: 9781909762336Subject(s): Urquhart, Emily -- Family | Albinos and albinism | Marginality, Social | Albinos and albinism -- Social aspectsDDC classification: 362.196550092 Summary: Emily's story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness. Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

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Item type	Current library	Call number	Status	Date due	Barcode
wnor- Book	Wundowie Wundowie Adult Non Fiction	362. 19655 URQ (Browse shelf(Opens below))	Available		31111067520229

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First published: USA : Harper Avenue, 2015.

Includes bibliographical references (pages 273-278)

Emily's story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness. Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.

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